(PDA) is a pervasive developmental disorder. PDA is related to, but separate from, what is currently termed the autistic spectrum, namely autism and Asperger syndrome. Individuals with PDA are typically socially manipulative with people, and are thus superficially socially skilled, which sets them apart from autism and Asperger syndrome.

People with PDA usually have good eye contact, and use this to good effect when socially manipulating others. They lack self identity, and children find it difficult to recognise that they are not adult, and seldom identify with other children. While people with PDA usually know how others should behave, they are unable to include themselves within these expectations. They are often imitative of inappropriate behaviour, and it is for this reason that, wherever feasible, support should be given in mainstream school to provide them with as normal a peer group as possible. They show an obsessive need to dominate in social interactions, and to ensure that everything is done on their own terms, and often come across as overbearing. It is helpful to view this behaviour as a defensive strategy that is borne out of deep anxiety about the demands that they fear will be made of them, and a need to control their environment to prevent this.

People with PDA seem to feel an urgent need to avoid the ordinary everyday demands placed on them, to a pathological degree which is not normal laziness or timidity. Their social skills allow them to use excuses; distraction attempts (such as ‘Wow, look over there!’ just as you are asking for their cooperation), or controlling the interaction by refusing to speak or trying to drown out your voice with speech or singing (according to the child’s personality) are all very common. For more descriptive details of ways in which different children try to resist demands, please refer to the Diagnostic Criteria section.

People with PDA may remind others of autism/Asperger syndrome. However, because they do not fulfil those criteria precisely, or have other features that are unusual in autism and Asperger syndrome, they may have been described as having ‘atypical’ or ‘non-typical’ Asperger or autism, or ‘Pervasive Developmental Disorder n.o.s’ (not otherwise specified).

Children with PDA usually under-achieve in school compared with what is perceived as their ‘true’ potential, only producing the barest minimum of work. This is reflected by frustrated teachers in comments such as ‘I know he could do better if only he tried’ or ‘She must be more intelligent than she seems because she’s so devious!’ Some children try to keep a very low profile, trying to blend in to avoid any attention being drawn to them, and this has been described by some as the ‘Camouflage Effect’; however, when they receive unwanted attention they may become actively disruptive. Some hit out or swear as another way of stopping imminent demands. These two types of PDA behaviour both seem anxiety-induced and might be described as ‘actively passive’ to ‘actively disruptive’; they could be seen as possible sub-groups, but some children move from one type of behaviour to another at different ages. It is important to remember that these children do not choose to behave in these ways. It is their inability to cope with what they perceive as the stress of everyday demands that manifests itself differently according to their individual personalities, and possibly underlying cognitive deficits and neurological pathologies.

Examples of PDA VS. Aspergers Syndrome statistics

PDA children are LESS likely:

  • to have caused anxiety to parents before 18 months of age
  • to show stereotypical motor mannerisms
  • to show (or have shown) echolalia or pronoun reversal
  • to show speech anomalies in terms of pragmatics
  • to show (or have shown) tiptoe walking
  • to show compulsive adherence to routines

PDA children are MORE likely:

  • to resist demands obsessively (100%)
  • to be socially manipulative (100% by age five)
  • to show normal eye contact
  • to show excessive lability of mood and impulsivity
  • to show social mimicry (includes gestures and personal style)
  • to show role play (more extended and complete than mimicry)
  • to show other types of symbolic play
  • to be female (50%)

The above data is taken from Pathological Demand Avoidance syndrome: Discriminant Functions analysis demonstrating its essential differences from autism and Asperger syndrome: Elizabeth Newson and Kathryn le Marechal, Early Years Diagnostic Centre and University of Nottingham, England.

People with PDA can become obsessive about particular individuals or relationships. They tend to show a high level of impulsivity, excitability and sometimes violent behavior, often associated with these obsessive interests, and occasionally involving harassment of another child or adult. Their obsessive interests are qualitatively different from those seen in autism/Aspergers.

Like all children with a pervasive developmental disorder, people with PDA will have certain communication problems, although these may be masked by their superficially high social skills of distraction and avoidance, thus the underlying deficits can be quite easily overlooked. Semantic pragmatic language (the social use of language, including body language) may also be affected, but not to the degree found in autism and Asperger syndrome. Bizarre content of language is more common than in autism, sometimes due to interest in fantasy.

Individuals with PDA tend to have over-active imagination as opposed to under-active, and this clearly sets them apart from Wing’s description of the autistic Triad of Impairments. Individuals with PDA quite often become confused as to the boundaries of reality and imagination (as they also do with other boundaries). They may submerge themselves into characters that they have modeled themselves on, either from TV or from real life, and sometimes they can seem to have lost touch with their ‘real’ selves. Many children with PDA take on the role of their teacher in great detail, and will tell other children what to do (much to their annoyance!) Keeping the tolerance and sympathy of other children in the classroom can be a difficult task for teachers who are trying to meet the needs of a child with PDA.

Most of the characteristics mentioned tend to persist in various forms into adult life, but research in this area is not extensive at present. The prevalence of PDA compared with autism is presently not known.

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Couples Communicating with Aspergers Disorder

by admin on November 1, 2009

clip_image001 Couples Communicating with Aspergers Disorder

By Jody Smith | EmpowHer

This is an era of transition for adults with Asperger’s Syndrome (AS) and their spouses. Until recently, these couples battled unanswered questions and unresolved pain. But because of research and support groups, this can now change.

There is no one personality type for the Asperger’s adult. The traits they have in common are neurological in origin, and hamper their ability to read and respond to people around them. But these neurological markers, misunderstood in the past, damage their relationships, particularly if they are married.

For the non-Asperger’s, or neurotypical, partner there has been a barrier to emotional intimacy throughout the relationship. This may have caused resentment and grief that their AS mate does not love or value them. The neurotypical spouse (NT) may withdraw, or criticize their Aspie, and unhealthy patterns mushroom over years of misunderstanding.

The Aspie may despair that they will always fail in pleasing their mate, and may become hostile or give up trying. The ripples of rejection grow.

Enter new research into Asperger’s Syndrome. For couples starting out, and for couples who have weathered this storm for years and still want to weather it together, there is hope. Is it easy?

Probably not. Is it simple? Well, yes, in some ways.

The NT will need to accept the fact that they must learn a new way of communicating. They’ll need to understand that their partner does not “catch” nuances and hints and intimations that a neurotypical individual might. These things are invisible to the Aspie. Not because they have chosen this to be so. But simply because it is so. Facial expressions, small sighs, innuendo … these are wasted and non-productive. A straightforward and verbally precise manner is needed on the part of the NT.

And, if their AS mate values the relationship, and is willing to listen to this direct communication, life can change for the better. The Aspie needs to heed the NT’s feelings, even though the Aspie has no sense of this for themselves. If the Asperger’s spouse is willing to act on the NT’s stated needs, the partnership can work. The partners can find fulfillment together.

Does it mean saying goodbye to romance? Perhaps. Or, perhaps it means changing one’s idea of what romance is. Does it mean having to come out and say what you mean and mean what you say? Most definitely. And that isn’t a bad thing in any relationship.

Source: http://www.empowher.com/news/herarticle/2009/10/08/communication-between-aspergers-adults-and-their-spouses?page=0,0

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Couples Communication with Aspergers

November 1, 2009

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“Asperger’s Syndrome & Sexuality” (Book Review)

May 7, 2009

written by: Isabelle Henault  (London, 2006).
The forward to Ms. Henault’s extraordinary manual is written by renowned asperger’s expert Tony Attwood. He unreservedly recommends the content to any person dealing with asperger’s disorder and to caregivers who want to understand the specific issues related to sexuality within this population of individuals.
After reading Asperger’s Syndrome and [...]

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Additional Asperger Support Resources:

April 9, 2009

ASPERGER’S DISORDER HOMEPAGE:
www.aspergers.com

Meeting for parents of adults with aspergers:
Decatur, GA Third Thursday of Every Month Meeting for Parents of Adult Children with Autism, Asperger’s or PDD 7 p.m. to 9 p.m The Emory Autism Center [...]

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Young Adults with Aspergers and Healthy Living, an article posted by Dave Angel.

March 29, 2009

Question: I have a partner and many family members with Asperger’s, but the worst affected is 19.  He has very limited social skills, his eating pattern is poor, and so is his sleeping pattern.  But he is addicted to a [...]

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Single mom talks about the challenges faced when raising children with aspergers

March 19, 2009

I’m sure that many parents can identify with this single mom.  Many of the daunting emotional and financial challenges are common to any family dynamic.

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Ryan talks about coping with asperger’s challenges in the working world. A remarkable young artist shares his thoughts.

March 15, 2009
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Featured Video/ “Autism and Aspergers Awareness Video”: by an awesome young man who has been diagnosed on the autism spectrum.

March 10, 2009
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Asperger’s Syndrome or High Functioning Autism?

March 10, 2009

Question:

Should the criterion established for diagnosing Asperger’s Disorder (Syndrome) be assessed for clarification?
Discussion:
The DSM- IV-TR uses the same diagnostic code of 299.80 for both Asperger’s Disorder (AD) and for Pervasive Developmental Disorder (NOS) even though they are considered as separate disorders. This already depicts an overlap between the two diagnoses that could create subjective confusion [...]

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